Before she was born, I never gave much thought to what my daughter would eat for breakfast. If I did think about it, I figured she would have a typical American breakfast. Cereal and milk, pancakes, bacon and eggs, etc. But instead food has been a struggle for her. It’s been a long hard road to find things her body can tolerate because of her FPIES. But she has multiple other diagnoses also. Along the way we have found some supplements that ease one or more of her symptoms. Her doctors have also helped prescribe medications to help her. Today I’m thankful she has enough safe foods to make this breakfast possible, and greatful that we have found supplements and medications that improve her quality of life in many ways.
Pink cup-Gastrocrom, clear cup- water with B vitamin drops, syringes: CBD oil, cod liver oil, sauerkraut juice, compounded zantec, salmon oil pills, prune with: chia seeds, Gerber Soothe probiotic, Culturelle, and phosphatidylserine, homemade oatmeal bread with peanut butter, and a chicken heart.
The Gastrocrom is a prescription mast cell stabilizer, it helps calm the mast cells in her GI tract so they are less sensitive to foods. It doesn’t prevent her most severe reactions, but it increases her ability to add new foods. Also having her GI tract be less reactive helps her weight gain follow her curve. The B vitamin drops seem to help her focus a bit. CBD oil decreases the intensity of her sensory seeking. Cod liver oil provides her Vitamin D, because she doesn’t tolerate the lanolin in most Vitamin D supplements. Sauerkraut juice provides probiotics, which helps address the abnormal gut microbiome in FPIES. Compounded Zantec (ranitidine) is used when we are off Gastrocrom, or starting it up while we wait for it to become effective. Salmon oil provides DHA and EPA for her brain. Prune and chia seeds help keep her regular. Gerber Soothe and Culturelle also help with her gut microbiome. Phosphatidylserine is an important lipid for the brain, it is available in combination with fish oil in the prescription medical food Vayarin, used for ADHD. The oatmeal bread is her current favorite breakfast food. A serving of organ meat each day, such as chicken heart provides a variety of vitamins and minerals. So that is how we arrived at this unusual looking breakfast. It brings me joy to see her eat a nutritious meal like this, such an improvement compared to when she was younger.
Recipe for Oatmeal Bread
1 cup Sprouted Oats
1 cup Sprouted Sunflower Seeds
8 duck or chicken eggs
Optional: coconut milk, nut butter, or fruit
Blend all ingredients and bake in a glass loaf pan at 350F for about 45 minutes until cooked
I was curious where you get some of your organ meets. I’m pregnant with my 3rd and I’m trying to prevent some problems my kids had. But the only clean source I’ve found is ancestral supplements.
I buy from local farmers, Natural Grocers, Whole Foods, Azure Standard, and US Wellness Meats. I hope you find my blog helpful.